Researchers are constantly looking for ways of preventing the disease, treatments to improve quality of life for people living with the disease and ultimately finding a cure to eradicate the disease.
Click here for a list of questions to ask when you are considering participation in a clinical study.
Below are current research studies looking for participants:
Perspectives on Health and Support Services for People with Young Onset Dementia
Do you want to participate in a study that will have an influence on services for people with young onset dementia and their families?
The researcher is Sheila Novek, PhD Candidate in Community Health Sciences at the University of Manitoba. She wants to examine health and support services for people with young onset dementia in Winnipeg from the perspectives of people living with the condition, family members and care providers. The findings will be used to develop recommendations to improve and expand services.
You are eligible for this study if you live in Winnipeg (or within driving distance of Winnipeg) and if you are:
- someone who developed dementia before the age of 65
- a family member of someone with young onset dementia
- a health care professional or service provider who delivers care and supports to people with young onset dementia and their family members
Participating in the study involves taking part in two conversational interviews, about six months apart. Interviews will last between 30 minutes and two hours and will be conducted at a time and location that is convenient for you.
Participants who have dementia may choose to have shorter interviews, and they may also bring along a family member or friend.
Would You Like to Improve the Supports Available
to Caregivers in Your Community?
You are invited to participate in a study that will explore your experiences as a caregiver of someone with dementia. Specifically, the study will look at how you are able to access and use community resources that are available to help you in your caregiver journey. It will investigate how to bridge the gaps between caregivers and community supports.
Taking place in both Winnipeg and in Westchester County, New York, the study is recruiting individuals 18 years and older who care for an individual with dementia. Participants will be asked to fill in a confidential survey that will take 10 to 15 minutes to complete. If you choose, you can also participate in the second stage of the study, which includes a 45 to 60 minute one-on-one interview conducted by the lead researcher or one of her team members.
The researcher conducting this study is Marlene George, who completed her B.N. at the University of Manitoba. She is currently completing her Master of Arts in Health Advocacy at Sarah Lawrence College in Bronxville, New York. If you have any questions, please contact Marlene at firstname.lastname@example.org
Click here to for information or to sign up for participation in this study.
Get Involved in a Study that may Help People
in the Early Stages of Alzheimer’s Disease
Led by Dr. Zahra Moussavi, the study will test a technology called rTMS (Repetitive Transcranial Magnetic Stimulation), a non-invasive procedure that has the potential to slow down the effects of Alzheimer’s disease when it is in the early stages. The technology involves using magnetic pulses to cause neurons in the brain to activate, which will hopefully train them to perform better in the future.
Participants would commit to either 10 treatments over two weeks or 20 treatments over four weeks, with each treatment taking 30 minutes. Additionally, there are six assessments that take place before, during and after the treatment. Treatments take place at Riverview Health Centre, 1 Morley Avenue in Winnipeg.
If you would like more information or if you are interested in participating in this study, contact Dr. Zahra Moussavi at Zahra.Moussavi@umanitoba.ca or Grant Rutherford at email@example.com. Email is preferred, but if this is not possible, contact Dr. Moussavi at 204-474-7023 or Grant Rutherford at 204-478-6163.
Click here for more detailed information.
The Dementia Sibling Study: Brothers and Sisters Sharing Caregiving Responsibilities
Occupational Therapy students from the University of Toronto Masters program are conducting a study about the experiences of adult children who are caring for their parent with dementia.
The study explores how caregiving responsibilities are shared between adult daughters and sons. Researchers hope to gain a better understanding of the needs of family caregivers.
Sibling will be asked to individually fill out a survey that will take approximately 30 – 45 minutes to complete. The survey asks about your experiences regarding your caregiving role and how you share responsibilities with your sibling. The questions include rating scales and short answers.
Online Research Survey for Family Caregivers
If so, you are invited to participate in a research study about caregiving experiences and well-being. Participation will take about 10 minutes and your answers will be anonymous. The results of this survey will contribute to a better understanding of the experiences of familial caregivers and their overall well-being. It will also provide information to help make caregiver support services better.
The researcher conducting this study is Nicole Haverstock under the supervision of Dr. Joelle Ruthig. Nicole is originally from Brandon, Manitoba, where she completed her B.A. at Brandon University. She is currently studying clinical psychology at the University of North Dakota in Grand Forks. This research is for her Master’s thesis.
Click here for more information.
Click here to complete the survey online. You participation is very much appreciated!
Do You Work and Help Care for a Relative with Dementia?
Please Consider Participating in this Study
We would like to hear your story about your dual role as an employee and caregiver. Your time commitment to this interview is 45-60 minutes.
You may also choose to participate in an eight-week program which includes two-hour group sessions of education, problem solving techniques and information about dementia and community resources. You may also participate in a focus group to share your thoughts about the program. Your time commitment to this focus group is 75-90 minutes.
For further information about the study, click here.
To participate, please contact: Jocelyne Lemoine, Site Coordinator, at 204-474-9476 or Jocelyne.Lemoine@umanitoba.ca
This study is funded by the Canadian Institutes of Health Research (CIHR) and is part of the Canadian Consortium on Neurodegeneration in Aging. It has been reviewed and cleared by Mount Sinai Hospital Research Ethics Board, University of Manitoba Education/Nursing Research Ethics Board and Southern Health Research Ethics Board. If you have any concerns or complaints please contact the Human Ethics Coordinator at firstname.lastname@example.org
Online Research Survey for Family Caregivers -
University of Manitoba
If so, you are invited to participate in a research study titled, Medication Management by Informal Caregivers for Community-Dwelling Persons with Dementia. Participation will take about 10 minutes and your answers will be anonymous. The results of this survey will help researchers gain insight into some issues caregivers for persons living with dementia face in the community when they assist and manage medications for their care recipient.
Please complete the survey at: http://fluidsurveys.com/s/medsurvey/
Dr. I fan Kuo, Assistant Professor, College of Pharmacy, Faculty of Health Sciences, University of Manitoba,
Ph. 204-318-2576; email: I.Kuo@umanitoba.ca
Dr. Christopher Louizos, Pharmacy Practice Instructor, College of Pharmacy, Faculty of Health Sciences, University of Manitoba
Your participation is very much appreciated.
Finding Ways to Help Those with Young Onset Dementia
The Alzheimer Society is asking for your help: we want to identify existing and new resources that are needed to provide information and support for people with young onset dementia. The purpose is to better meet the needs of these individuals at the time of the young onset diagnosis and throughout the course of the disease.
An individual with young onset dementia is someone who has received a diagnosis of Alzheimer’s disease or other dementia before the age of 65 years. We are asking for advice and feedback from those with lived experience of young onset dementia, their caregivers and health care professionals.
To this end, three surveys have been developed (links are below). You can choose the one that is appropriate for you.
Have You Lost Your Spouse to Dementia?
This Study Strives to Find a Way to Help
Dealing with grief that comes from the loss of a spouse can be very difficult, especially for those who cared for a partner who died with dementia. Spousal caregivers clearly require support to facilitate their adjustment from being a dementia caregiver to living a positive life without their spouse. Unfortunately, few resources and interventions are available to help bereaved spousal caregivers of persons with dementia. In order to meet the unique needs of bereaved spousal caregivers, we are looking for volunteers in Manitoba to take part in a study. The study will test a self-administered writing tool for bereavement after caring for a spouse with dementia.
We are looking for individuals who:
- are 60 years of age or older.
- had a spouse die three months ago or longer.
- had a spouse die with advanced dementia.
- are able to read/write/understand English.
As a participant in this study, you would be asked to participate in three interviews, each of which will last approximately 60 minutes. You will also be asked to use and provide feedback about the bereavement tool.
In appreciation for your time, you will receive a gift card.
If you would like to participate in this research project or have questions, please do not hesitate to call Research Coordinator, Paula Black, at 204-787-4932 or email: email@example.com
This research has been approved by the University of Manitoba Health Research Ethics Board.
Research Project Seeks Participants
Relationships are important to us all. People with dementia need and want to remain connected to those they know, whether that means through socializing, doing tasks or just being together. Family and friends of people living with dementia also want to keep the relationship alive and vital. In doing so, they provide support, enabling the person living with cognitive changes to be as engaged as possible.
PhD candidate and registered nurse Barbara Tallman is conducting a research project that will examine how individuals with dementia and significant people in their lives relate. She is trying to answer the question: How do people with dementia and those with whom they are intimately involved describe, react to and understand each other in their relationship and in everyday activities?
“My study is seeking candidate pairs: they could be spouses, a person with dementia and one of their children, or a person with dementia and a friend,” says Tallman. “I’ll be interviewing the pair separately and together to hear their perspectives on their relationship. I’ll also be observing the similarities and differences about how they view their life together over the years and in the present.” She is interested in how one of the pair having dementia has changed or enriched the relationship.
The study participants will also be invited to participate in an activity of their choice in which the pair’s interaction can be observed. “I’ll be looking at how they interact, help one another and communicate,” says Barbara.
Tallman is seeking couples or pairs that have known one another for at least five years, and where one has a diagnosis of a type of dementia but does not live in a personal care home. The pair may live together or apart.
The study has been approved by the Education/Nursing Research Ethics Board of the University of Manitoba.
To express interest in this study and to learn whether becoming a participant is for you, contact Barbara Tallman at 204-330-5070 or email firstname.lastname@example.org. To view a poster about this study, click here.
Early Detection of Memory Impairment
as the First Step for Effective Treatment
Volunteers needed for Alzheimer’s Early Signs Study
We are conducting an investigation for detecting the early symptoms of Alzheimer’s condition. Therefore, we need volunteers both with and without any symptoms of dementia or Alzheimer’s.
We hypothesize that Alzheimer’s condition shows itself in spatial performance long before any serious sign of forgetfulness appears. Therefore, we have designed a fun virtual reality game to assess the spatial cognition through navigation in a virtual building. All you have to do is to play the game! During the game you will sit in a wheelchair, and you will wear a goggle (Oculus Rift 2), in which displays the virtual reality environment in an immersive manner (you will only see the virtual environment and can navigate on it with the wheelchair). You will be asked to move the wheelchair to reach a room inside the building. The wheelchair basically replaces the joystick for playing the game; this is done so that people do not feel motion sickness or headache that is common when older adults use joystick to play a game. The game is entertaining and stimulating.
This study has been approved by the Health Research Ethics Board of the University of Manitoba.
The location of the experiments is at the Fort Gary Campus, University of Manitoba; you will be informed of the exact location of the experiment once you volunteer as we normally run it in one of the three very large rooms, whichever is available at the time. We can run the experiments also in the evening; therefore, there are plenty of room for parking! The study (including a simple questionnaire and the game) takes at most 45 minutes.
To read more about VRP experiments, you may read:
If interested to be a volunteer and/or help recruiting, and/or need more info, please contact:
Mari Tere García at (204) 479-3501
Dr. Zahra Moussavi at 474-7023
Understanding and Responding to Reactive Behaviour
A researcher from Brandon University is looking for family and paid caregivers who witness this behaviour in the person they care for. The study, called Caring for Reactive Behaviours in Dementia, will examine how caregivers understand and respond to these behaviours with a goal to inform future support services and programming.
Participation involves a one- to two-hour interview to take place at a time and location convenient to you. The person with dementia who you care for must have moved to assisted housing or long-term care within the last two years.
For more information, contact Dr. Rachel Herron, Department of Geography, Brandon University at 204-727-9771 or at email@example.com.
Examining Ideas for Innovative Technology for Caregivers
Are you a family caregiver for an older adult OR are you an older adult who is a caregiver? Would you like to participate in research that will help to identify technological solutions to assist with some of the challenges of caregiving?
Researchers from the University of British Columbia are looking for volunteers to participate in a study examining caregiver burden and caregiver technologies. Your interaction with researchers will be by phone. The study involves answering questions about your caregiving background and your perceptions of caregiver activities and technologies. The Principal Investigator is Dr. Ben Mortenson of the Department of Occupational Science & Occupational Therapy at the University of British Columbia.
For more information, contact Leena Chau at 604-714-4108 or at firstname.lastname@example.org